I cant sleep so figured I would update. I had a heart biopsy on Tue 24th and no rejection!! All good
Waiting to hear if DSA came back negative although I am not worrieed about it.
Bri had softball tourney this weekend and hit a triple last night then turn around and did it again today! She has been in a slump and hope her confidence is back.
If my knees and legs were not hurting so bad I would be feeling great!
I have just been crafting as usual and the kids were home last week and again this week. Unlike most parents I like when they are home :) Then I am not as lonely.
I got my hair straightend and I love it, so much easier. I wash it today and still straight. I was scared hehe I like waking up and not having a afro!!
Both kids got a goods report card. Bri was sooo close to straight A's.......Rob is happy with B's. He could do better but dont try. Bri has report and its done week ahead of time, where as Rob is doing the night before!
My Dudley is sooooooooooo happy and loves his papa to death! I am so happy for him and I love not having any dogs. We are to busy to have a dog.
My heart transplant team is referring me to see Dr Perlman (fa) dr in southern ca ucla. I cant wait! She is an ataxia specialist.
I cant think of anything else I need to report so if I remember anything I will share it next time.
Love all
Tppi
Monday, March 30, 2009
cant sleep
Posted by Tippi at 12:19 AM 1 comments
Thursday, March 19, 2009
Been a while
Bee card
I get off prednisone Saturday woooo
Posted by Tippi at 11:56 AM 2 comments
Wednesday, March 11, 2009
Friedreich"s ataxia
Go watch this video
http://www.montekids.org/kkh/topics/friedreichs-ataxia/
Posted by Tippi at 7:50 PM 1 comments
Friday, March 6, 2009
feeling better
Finally feeling better!!!!!!!!!
Just trying to adjust med's to get head back to normal. Started 5 mg prednisone today and stay here until further notice.
Gained a little but not as much as I thought. The prednisone made me retain some fluid and face of course but ankles also puffy.. I been on lasiz for 3 days now and almost gone! Wooooooooooooo
Went to the neurologist yesterday and he said there really has been no change since last visit a year n half ago. ( That is a good thing) SLOW
I am finally cleaning my room today so I can scrap!!! Its been so long since I have felt good to make a HUGE paper mess hehe
Dudley is doing sooooooooooooooooo good with my mom and dad, I am so happy for the little snot!
Bri softball team did really good at there 1st tourney! She is on a pretty good team.
Glad its Friday and maybe I can post a pic of a new something I made hehe
Have a good weekend!
Posted by Tippi at 12:57 PM 0 comments