Friday, February 27, 2009


I have been in my room for days!!!!!!!!!!!!!!!! Iwant out of jail but at the same time this dizzy wont go away.

They are changing my meds today so I hope this helps.

Bri has a softball tourn this weekend in salinas. Hope it dont rain out there, we are leaving early in the morning.

Tonight Scott will drop me off at the Front Room and I will meet all the ladys I used to work with at the college! That will be nice, I have not seen any of them in at least a year!!

That is about all that is new. I have not scrapped as I been laying more than sitting grrrrrrrrrrrrrrr hope to start again!!! I miss my hobby (addiction) hehe

Love all Tip

Wednesday, February 25, 2009

no more rejection!!

I am back to what I usually am. 1a/1r which is not NER (no evidence of rejection) but they are totally happy with a 1.

Now I just need to get off this high dose prednisone. I passed out yeterday in x-ray (so dizzy) grrrrrrrrrrrrrrr

but I am alive!!!!!!!! wooooooooooooooo hehehe

Sunday, February 22, 2009


Omgosh all I want is food!!!!!!!!!!!!!!!!!!!!!! I am already up 18lbs and now this high prednisone I want more food.

I started oral prednisone yesterday. I have been up since 5:30 but I did not want to take ambein to see if for one that is causing dizzy and for two Bri was supposed to have a friendly softball but it got rained out.

I dont feel bad except for the high dose med's. They are icky!!

Go tue for another heart biopsy and will know wed if all the massive drugs knocked out rejection! I am not gonna stress unless it dont.

Ok I need to find food grrrrrrrrrrrrrrrrrrrrr this is worse than in the begining!!!!!!

Saturday, February 21, 2009

This is how her hair looks most days because she is lazy!!!!!!!!!!!!!!
Will update on me later!

Snuck one of Rob!

Thursday, February 19, 2009


I had my biopsy this last tue the 17th and got a call yesterday morning that I had to go do IV infusion of 1000mg of some drug that is like prednisone, for 3 days in row.
Then starting Sat i go on heavy pill form prednisone with a taper.

Had 1st infusion yesterday and not sure if I even slept!!!!!!! grrrrrrrrrrrrrrr

I go back next tue 24th for another biopsy and hope the drugs knock it out!

I have some pic I will post later of Bri playing w my make-up she is so beautiful :)

Ok I got a new keyboard that I need to get used to, that is why lag on update, its hard to type lol

Monday, February 9, 2009

The latest

I need to make something other than cards!!!! I got them coming out of EVERYWHERE!!

My B-day dinner was very good. My mom and dad came and took us all out for dinner and was very nice.

I texted Juanita ( my donor mom) and tell her it was my b-day and thanked her for her decsion to make it possible for me to see another.
We plan to meet in April.

I have not went to labs lately as white blood cell count was good last time so I will just wait for Feb 17th when I go for next heart biopsy. I have a feeling my cylosporne (spell) is high as I am a bit shakey! ( Well more than usual )

Bri softball team just had there first lil friendly double header and won both games, so that was good.

I am hoping Debbie is well enough to pick me up tomorrow to take me with her to Santa Clara Kaiser for our once a month heart transplant meeting.
I have not been in 2 months! Scott is already taking time off work as it is to bring me to biopsy's so when that is not once a month then he can start going to support with me as well. ( i dont drive freeway) noooooooooooooo way.

I have been very frustrated lately. The heart surgery went well and my heart has been all good so far, but my FA is sooooooooooo much worse.
I am barely walking now a days and my legs ache all the time!!! Weight loss has been so hard not able to excerise ( i want to but then after a few days I am down for two).

My mom and dad took Dudley our pug who is 5 year old and never potty trained.
After we had to put Jess down, he is all alone now and I am the only one here all day long and I cant give him what he needs. They are willing to give him a shot to keep him in family or I am either going to ship him to my sis or give him over to pug rescue.
I really hope he gets it!!!

Well I guess that is it for now so until next time, BE SAFE

Wednesday, February 4, 2009


She just got her hair cut and I love it when its done!! So beautiful!!!!!!!!!!!!!
This is my goal, to grow out my hair just like her's :)

Tuesday, February 3, 2009

That is just some stuff I made over the last couple days.
I did not win the football pool :( if that first steeler touchdown were to count I would have had 50.00 that quater!!
Well some good news. I have been having very low white blood cell count for a while now. I think we finally figured out it was the Idebenone I take for FA.
The drug family helped me get a couple years ago. I still take it 2 years later and now im cutting dose in half and cell count is now 5.0 which is lower but low end of normal!! That is a good thing!
Besides that and what I have been making that is about all the new stuff I got to share :) until next time!!!