I need to make something other than cards!!!! I got them coming out of EVERYWHERE!!
My B-day dinner was very good. My mom and dad came and took us all out for dinner and was very nice.
I texted Juanita ( my donor mom) and tell her it was my b-day and thanked her for her decsion to make it possible for me to see another.
We plan to meet in April.
I have not went to labs lately as white blood cell count was good last time so I will just wait for Feb 17th when I go for next heart biopsy. I have a feeling my cylosporne (spell) is high as I am a bit shakey! ( Well more than usual )
Bri softball team just had there first lil friendly double header and won both games, so that was good.
I am hoping Debbie is well enough to pick me up tomorrow to take me with her to Santa Clara Kaiser for our once a month heart transplant meeting.
I have not been in 2 months! Scott is already taking time off work as it is to bring me to biopsy's so when that is not once a month then he can start going to support with me as well. ( i dont drive freeway) noooooooooooooo way.
I have been very frustrated lately. The heart surgery went well and my heart has been all good so far, but my FA is sooooooooooo much worse.
I am barely walking now a days and my legs ache all the time!!! Weight loss has been so hard not able to excerise ( i want to but then after a few days I am down for two).
My mom and dad took Dudley our pug who is 5 year old and never potty trained.
After we had to put Jess down, he is all alone now and I am the only one here all day long and I cant give him what he needs. They are willing to give him a shot to keep him in family or I am either going to ship him to my sis or give him over to pug rescue.
I really hope he gets it!!!
Well I guess that is it for now so until next time, BE SAFE
Monday, February 9, 2009
The latest
Posted by Tippi at 10:41 AM
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2 comments:
I love the cards, didn't know that you made them?
Hi Tippi, we had a lot of fun that day at support. Everyone was so happy to see you there. As long as I feel good we will go together each month. Ok, its a date! I know how you feel. I wish I didn't have to deal with my disease, Amyloidosis and only the heart. The heart is so easy. I feel great! Yes, some shaky times and headaches, but really feeling ok. Its the chemo treatments and the side effects that are hard to handle. Also, the emotional decision I'm face with whether to have a stem cell transplant. I'm scared but know my life depends on it. I think I have to make the decision now due to my lambha light chains going up to 311 from 155. I don't think I have a choice anymore. I will wait for Kevin to complete his stem cell transplant in April and make the decision. I wish we didn't have our diseases. I pray each day that a cure will be found. In the meantime, I will continue to pray and you know I will always be here for you. love you much, debbie
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