Monday, March 30, 2009

cant sleep

I cant sleep so figured I would update. I had a heart biopsy on Tue 24th and no rejection!! All good

Waiting to hear if DSA came back negative although I am not worrieed about it.

Bri had softball tourney this weekend and hit a triple last night then turn around and did it again today! She has been in a slump and hope her confidence is back.

If my knees and legs were not hurting so bad I would be feeling great!

I have just been crafting as usual and the kids were home last week and again this week. Unlike most parents I like when they are home :) Then I am not as lonely.

I got my hair straightend and I love it, so much easier. I wash it today and still straight. I was scared hehe I like waking up and not having a afro!!

Both kids got a goods report card. Bri was sooo close to straight A's.......Rob is happy with B's. He could do better but dont try. Bri has report and its done week ahead of time, where as Rob is doing the night before!

My Dudley is sooooooooooo happy and loves his papa to death! I am so happy for him and I love not having any dogs. We are to busy to have a dog.

My heart transplant team is referring me to see Dr Perlman (fa) dr in southern ca ucla. I cant wait! She is an ataxia specialist.

I cant think of anything else I need to report so if I remember anything I will share it next time.

Love all

Thursday, March 19, 2009

Been a while

Easter pull treats

random types of bookmarkers

Bee card

Easter cards

Well its been a week or so since I last posted.

I get off prednisone Saturday woooo

Started a new b/p and I think its helping.

I go in Friday to get a event monitor that I have to wear for a month to make sure heart is ok. I am sure the passing out episode was from the med's.

I have been feeling pretty good the last couple weeks and got some things made. I will post some pictures. That is funny it posted my pictures first and not last hmmmmmmmmmmmmmm oh well :)
Its almost Friday!!!!!!!!!!!!! Have a great weekend

Wednesday, March 11, 2009

Friedreich"s ataxia

Go watch this video

Friday, March 6, 2009

feeling better

Finally feeling better!!!!!!!!!

Just trying to adjust med's to get head back to normal. Started 5 mg prednisone today and stay here until further notice.

Gained a little but not as much as I thought. The prednisone made me retain some fluid and face of course but ankles also puffy.. I been on lasiz for 3 days now and almost gone! Wooooooooooooo

Went to the neurologist yesterday and he said there really has been no change since last visit a year n half ago. ( That is a good thing) SLOW

I am finally cleaning my room today so I can scrap!!! Its been so long since I have felt good to make a HUGE paper mess hehe

Dudley is doing sooooooooooooooooo good with my mom and dad, I am so happy for the little snot!

Bri softball team did really good at there 1st tourney! She is on a pretty good team.

Glad its Friday and maybe I can post a pic of a new something I made hehe

Have a good weekend!