I have been in my room for days!!!!!!!!!!!!!!!! Iwant out of jail but at the same time this dizzy wont go away.
They are changing my meds today so I hope this helps.
Bri has a softball tourn this weekend in salinas. Hope it dont rain out there, we are leaving early in the morning.
Tonight Scott will drop me off at the Front Room and I will meet all the ladys I used to work with at the college! That will be nice, I have not seen any of them in at least a year!!
That is about all that is new. I have not scrapped as I been laying more than sitting grrrrrrrrrrrrrrr hope to start again!!! I miss my hobby (addiction) hehe
Love all Tip
Friday, February 27, 2009
Bored
Posted by Tippi at 11:30 AM 0 comments
Wednesday, February 25, 2009
no more rejection!!
I am back to what I usually am. 1a/1r which is not NER (no evidence of rejection) but they are totally happy with a 1.
Now I just need to get off this high dose prednisone. I passed out yeterday in x-ray (so dizzy) grrrrrrrrrrrrrrr
but I am alive!!!!!!!! wooooooooooooooo hehehe
Posted by Tippi at 7:33 PM 1 comments
Sunday, February 22, 2009
Food
Omgosh all I want is food!!!!!!!!!!!!!!!!!!!!!! I am already up 18lbs and now this high prednisone I want more food.
I started oral prednisone yesterday. I have been up since 5:30 but I did not want to take ambein to see if for one that is causing dizzy and for two Bri was supposed to have a friendly softball tourn.today but it got rained out.
I dont feel bad except for the high dose med's. They are icky!!
Go tue for another heart biopsy and will know wed if all the massive drugs knocked out rejection! I am not gonna stress unless it dont.
Ok I need to find food grrrrrrrrrrrrrrrrrrrrr this is worse than in the begining!!!!!!
Posted by Tippi at 10:15 AM 0 comments
Saturday, February 21, 2009
Thursday, February 19, 2009
rejection!
I had my biopsy this last tue the 17th and got a call yesterday morning that I had to go do IV infusion of 1000mg of some drug that is like prednisone, for 3 days in row.
Then starting Sat i go on heavy pill form prednisone with a taper.
Had 1st infusion yesterday and not sure if I even slept!!!!!!! grrrrrrrrrrrrrrr
I go back next tue 24th for another biopsy and hope the drugs knock it out!
I have some pic I will post later of Bri playing w my make-up she is so beautiful :)
Ok I got a new keyboard that I need to get used to, that is why lag on update, its hard to type lol
Posted by Tippi at 8:45 AM 0 comments
Monday, February 9, 2009
The latest
I need to make something other than cards!!!! I got them coming out of EVERYWHERE!!
My B-day dinner was very good. My mom and dad came and took us all out for dinner and was very nice.
I texted Juanita ( my donor mom) and tell her it was my b-day and thanked her for her decsion to make it possible for me to see another.
We plan to meet in April.
I have not went to labs lately as white blood cell count was good last time so I will just wait for Feb 17th when I go for next heart biopsy. I have a feeling my cylosporne (spell) is high as I am a bit shakey! ( Well more than usual )
Bri softball team just had there first lil friendly double header and won both games, so that was good.
I am hoping Debbie is well enough to pick me up tomorrow to take me with her to Santa Clara Kaiser for our once a month heart transplant meeting.
I have not been in 2 months! Scott is already taking time off work as it is to bring me to biopsy's so when that is not once a month then he can start going to support with me as well. ( i dont drive freeway) noooooooooooooo way.
I have been very frustrated lately. The heart surgery went well and my heart has been all good so far, but my FA is sooooooooooo much worse.
I am barely walking now a days and my legs ache all the time!!! Weight loss has been so hard not able to excerise ( i want to but then after a few days I am down for two).
My mom and dad took Dudley our pug who is 5 year old and never potty trained.
After we had to put Jess down, he is all alone now and I am the only one here all day long and I cant give him what he needs. They are willing to give him a shot to keep him in family or I am either going to ship him to my sis or give him over to pug rescue.
I really hope he gets it!!!
Well I guess that is it for now so until next time, BE SAFE
Posted by Tippi at 10:41 AM 2 comments
Wednesday, February 4, 2009
Brianna
Posted by Tippi at 2:33 PM 3 comments
Tuesday, February 3, 2009
Posted by Tippi at 9:29 PM 0 comments