Well we came in 1st place again in our division?? Lots of teams so there was division brackets. I decided to come down with a cold last Friday while gone at softball tourney!!
It has now been 9 days and it wont go away!!!!!!!!!!!!!!!!!
Well its a little sad to say but we are leaving the softball team for another one. Right now we are on under12A travel ball team. She can not go to under12B team so we went to a under 14B. They need a pitcher and Bri is a pitcher!! She has not got a chance to pitch on her 12A team because its a better team she is young one and not as big and strong as a couple girls.
She wants to pitch!!! and we want to see her pitch!!!!!!!! This is the main reason.
Well i better go get ready as she has practice in less than 2 hours.
have a good Sunday!
Tip
Sunday, May 31, 2009
memorial weekend
Posted by Tippi at 12:10 PM 0 comments
Friday, May 22, 2009
Posted by Tippi at 10:48 AM 1 comments
A book of me
6x6 book i started of just Bri and I when I was on heart list just in case I did not make it and she had to always remeber us!
6x6
6x6
6x6
Posted by Tippi at 10:21 AM 0 comments
Wednesday, May 20, 2009
Idol

First 1place Go Lady Hawks!
Rob and Janet prom 2009
Kris?? Are you serious!!!!!!!!!!!!!!!!!
Well guess what? Bri's softball team came in 1st Place this past weekend in Fremont!!
Saturday they did so bad and then sunday they kicked butt and won all 4 games to take 1st! Saturdays just place you for sundays then on sundays you play until you lose.
She also had a Soccer practice game and they won 2-1. Bri scored both goals :)
Go my lil sport girl :) The whole team is good but she is a forward and gets all the glory, however we know soccer is def. not a 1 man sport!! She is not the fastest but has a good kick and great ball control!
I really need to take some pictures of stuff I made. Maybe tomorrow!
That shot I got last wed. ohhhhhhhhhhhh man has helped soooo much!! I have no knee pain right now. I hope it last a while!!
Let me see if i CAN FIND A PIC OF rOB AT PROM. iT WILL PROBABLY POST THE PICTURE first again. (opps caps) hehehe
If no pic I will do it!!!
Tip
Posted by Tippi at 11:26 PM 0 comments
Wednesday, May 13, 2009
What's new?
Well lets see what is new? lol
Bri just won 1st place at her very last city wrestle tourney at school!!! Go Bri hehe
Scott has been sick off/on for two weeks now and it does not make any since. I just know I am gonna get sick!!!!!!!!! I dont need anymore issues..lol
I just went to dr today to see why this joint/knee pain. The plan for now is she gave me a shot in knee, x-rays of knee and finger, referral to pt for knee!! Go back in 3 weeks to see if shot or pt helped, oh and lots labs. No prednisone yet (last resort)
Rob grads in less than a month!!! Wow wee where did the time go?
My heart has been ok and I dont go back until June 9th for a appt. Hope that continues to go well.
I think we go to Fremont this weekend for softball, not totally sure. I am ready as we had the last two weeks off and I want out of house and in sun!
I really need to post some pics!! Got Rob at his prom too!! I am such a procrasinator and have no excuse hehehe not like im not on pc all day LOL
Getting ready 4 idol. Go Adam!!!!!!!!!!!!!!! I like Danny too but Adam is amazing!!
Until next time :)
Tip
Posted by Tippi at 5:47 PM 2 comments
Tuesday, April 28, 2009
lagger
oh man I am a lagger!! I still peck on this stupid keyboard that is why!
So Brianna's team came in 2nd place in Sac!! Then we went to Fresno this passed weekend and they did not do so hot!
She now started Soccer as well as Softball!!!!!!!! Oh man its busy around here with the sports!! however I love watching her :)
She likes both sports and does well at both so its hard for her to pick a favorite.
I am still aching really bad and trying to adjust med's to find the perfect mix. Other than that I feel pretty good. I fell on my butt on the cement, ouch!!!!!!!!!!!!! It still hurts and its been 5 days.
Got to run, chiro appt time!! I told ya the evenings are crazy busy!
Posted by Tippi at 4:39 PM 0 comments
Saturday, April 18, 2009
the weekend
Finally the weekend has arrived and its gonna be a nice (weather) one.
My last check up was Tuesday and I had no biopsy, just blood work (allomap). It checks for rejection as well. My allomap came back like it always is. That means I just go for another checkup in June and do a dsa blood test. If all well then no more biopsy for a year!! (my neck can use the break).
Bri has a softball torney in Sacramento but the first game is at 2:30. Wow late, never had this late of a bracket. Last game starts at 7:30! So we will get home late and have to be back at 7 a.m. lolol
Scott just went to kaiser! He got bit by something in his sleep Thursday night and now this morning hurts really bad and a red line going up arm!! Sign of infection!! Good thing we have a late start with ball. Only 9 girls gonna be there, no subs! Which is fine with me as my daughter is one of the subs!! lol
I have been scrapping my butt off hehe I know I need to take pics. Some really cute layouts to :)
Let ya know how the girls do
Have a good weekend
Tip
Posted by Tippi at 11:23 AM 0 comments
Saturday, April 11, 2009
Monday, April 6, 2009
Donor's mother
Well Saturday my mom and dad took me to Hayward to the Ca donor network function and I got to attend that and meet my donors mother and her grandmother. She brought all kinds of pictures for me to look at, then we sat together for the function and then Juanita and Esther joined us for lunch at the Olive Garden.
My mom loved her mom Esther right away. She just liked her personality.
The gathering was to honor everyone who donated organs in 2008. It was a bit sad as most everyone of course who donates is very young :( Some babys too.
I got a nice book with photos etc. of everyone that donated in 2008 to remember them always. It was a special and i am sure emotional day for the families.
Juanita brought a t-shirt for me in rememberance of Angelina and her and my parents thought we sorta looked a like.
After my mom and dad took me to stockton to the hotel Scott and Bri were at for her softball tourney. I got to see them play Sunday and they did very well :)
One game away from the champ. game!
So I had a busy weekend and all went well :)
Until next time
Posted by Tippi at 2:52 PM 0 comments
Friday, April 3, 2009
Donor mom
I am going to meet my donor (Angelina's) mother tomorrow! My mom and Dad will take me as Scott will take Bri to a softball tourney.
I will post some pics of us and Angelina later!
Have a great weekend and tell ya about visit later.
Tip
Posted by Tippi at 2:54 PM 1 comments
Monday, March 30, 2009
cant sleep
I cant sleep so figured I would update. I had a heart biopsy on Tue 24th and no rejection!! All good
Waiting to hear if DSA came back negative although I am not worrieed about it.
Bri had softball tourney this weekend and hit a triple last night then turn around and did it again today! She has been in a slump and hope her confidence is back.
If my knees and legs were not hurting so bad I would be feeling great!
I have just been crafting as usual and the kids were home last week and again this week. Unlike most parents I like when they are home :) Then I am not as lonely.
I got my hair straightend and I love it, so much easier. I wash it today and still straight. I was scared hehe I like waking up and not having a afro!!
Both kids got a goods report card. Bri was sooo close to straight A's.......Rob is happy with B's. He could do better but dont try. Bri has report and its done week ahead of time, where as Rob is doing the night before!
My Dudley is sooooooooooo happy and loves his papa to death! I am so happy for him and I love not having any dogs. We are to busy to have a dog.
My heart transplant team is referring me to see Dr Perlman (fa) dr in southern ca ucla. I cant wait! She is an ataxia specialist.
I cant think of anything else I need to report so if I remember anything I will share it next time.
Love all
Tppi
Posted by Tippi at 12:19 AM 1 comments
Thursday, March 19, 2009
Been a while
Bee card
I get off prednisone Saturday woooo
Posted by Tippi at 11:56 AM 2 comments
Wednesday, March 11, 2009
Friedreich"s ataxia
Go watch this video
http://www.montekids.org/kkh/topics/friedreichs-ataxia/
Posted by Tippi at 7:50 PM 1 comments
Friday, March 6, 2009
feeling better
Finally feeling better!!!!!!!!!
Just trying to adjust med's to get head back to normal. Started 5 mg prednisone today and stay here until further notice.
Gained a little but not as much as I thought. The prednisone made me retain some fluid and face of course but ankles also puffy.. I been on lasiz for 3 days now and almost gone! Wooooooooooooo
Went to the neurologist yesterday and he said there really has been no change since last visit a year n half ago. ( That is a good thing) SLOW
I am finally cleaning my room today so I can scrap!!! Its been so long since I have felt good to make a HUGE paper mess hehe
Dudley is doing sooooooooooooooooo good with my mom and dad, I am so happy for the little snot!
Bri softball team did really good at there 1st tourney! She is on a pretty good team.
Glad its Friday and maybe I can post a pic of a new something I made hehe
Have a good weekend!
Posted by Tippi at 12:57 PM 0 comments
Friday, February 27, 2009
Bored
I have been in my room for days!!!!!!!!!!!!!!!! Iwant out of jail but at the same time this dizzy wont go away.
They are changing my meds today so I hope this helps.
Bri has a softball tourn this weekend in salinas. Hope it dont rain out there, we are leaving early in the morning.
Tonight Scott will drop me off at the Front Room and I will meet all the ladys I used to work with at the college! That will be nice, I have not seen any of them in at least a year!!
That is about all that is new. I have not scrapped as I been laying more than sitting grrrrrrrrrrrrrrr hope to start again!!! I miss my hobby (addiction) hehe
Love all Tip
Posted by Tippi at 11:30 AM 0 comments
Wednesday, February 25, 2009
no more rejection!!
I am back to what I usually am. 1a/1r which is not NER (no evidence of rejection) but they are totally happy with a 1.
Now I just need to get off this high dose prednisone. I passed out yeterday in x-ray (so dizzy) grrrrrrrrrrrrrrr
but I am alive!!!!!!!! wooooooooooooooo hehehe
Posted by Tippi at 7:33 PM 1 comments
Sunday, February 22, 2009
Food
Omgosh all I want is food!!!!!!!!!!!!!!!!!!!!!! I am already up 18lbs and now this high prednisone I want more food.
I started oral prednisone yesterday. I have been up since 5:30 but I did not want to take ambein to see if for one that is causing dizzy and for two Bri was supposed to have a friendly softball tourn.today but it got rained out.
I dont feel bad except for the high dose med's. They are icky!!
Go tue for another heart biopsy and will know wed if all the massive drugs knocked out rejection! I am not gonna stress unless it dont.
Ok I need to find food grrrrrrrrrrrrrrrrrrrrr this is worse than in the begining!!!!!!
Posted by Tippi at 10:15 AM 0 comments