sad

i am so frustrated I wanna cry :(
before christmas my scale got down as low as 169 and now its 174
I have not eaten where I should have any sort of gain!! I dont get it!! The only thing I can think of is my period!! I am having a hysterectomy on feb 1 for 1x a month serious cramps/pain and constant bloating and bleeding that last like 3 out of 4 weeks!!
I am praying after surgery this stops messing with my scale!!! i know im doing things right and just continue but its hard not to wanna say screw it and eat :( Lord help me!!!

fast check in

ok going to bed now but just wanted to say I have done my handcycle two days in a row and some upper body weights today woooooooooo scale finally down a bit from holidays i will weigh tomorrow morning and post it!! Update again soon :)

New beginings

ok its been so long since i posted anything on here so im gonna start new today. I am focusing this blog to weight loss and not really scrapping anymore :(

I got my lapband July 8th 2010. i started at a weight of 255.9 and as of today I am 171. My scale did get as low as 168 right before Christmas so not really sure what is going on. Never went bad with food but Ham is high sodium and aunt Flo is messing with me so we will see.

Starting tomorrow Jan 2nd Monday 2012 i am going to do my hand cycle i bought and do some minor weights with arms to start. I need some kind of movement to get off these last few lbs.

Goal is lets say 160 but i would love 150-155. First I will see if i can do 160 and go lower if possible!!

I have been losing like 1/2lb a month for a long time now and my food if anything is better!! Just seems like body is happy here but i still got a lot of fat!! and a whole mess of skin


so I will post tomorrow after I cycle to say I did it!! and thanks to my wls community on facebook and you tube!! I would not be where I am today with out all of you :)

diet

wow its been months since I put anything on this blog.

Here is the pre op diet plan. I dont see why those who are not getting gastric cant do brown rice or whole wheat pasta for starch

Also the no carbination and no caffine is for after surgery

hope this is not copyright since they give diet out freely (kaiser hospital)

speech

Dont mind my grammer or spelling it was just for me :) i shared this at my 20yr class reunion sat night!



good evening fellow classmates,

let me start by saying I just might cry and my disease effects my speech causing me to run out of breath, yawn, crack and slur! So be patient with me please!

My name is Tippi many of you know me and many of you don’t. When Dackeyia first asked me to share I thought omgosh im really going back to highschool! I have to give a oral report!!!

However after I thought about it I thought it was a great opportunity to share my very rare disease and the importance of organ donation.

I have a inherited progressive disease that I was born with called Friedreich's ataxia (FA for short ). Most people come down with symptoms 9-15 years of age.
I was 27 when I first noticed things were not quit right .At the age of 31 I had a heart attack and finally after 7 years of going to the Dr. I got diagnosed with the FA at age 34. I knew I was not crazy!!!! its basically a muscle wasting disease effecting ever single muscle in your body.

the say my heart condition is secondary to the FA. I lived with a bad heart until I was 37 with the help of medication. Finally the medication did not work no longer and I started to go downhill.

my Vallejo kaiser Dr. referred me to heart transplant in santa Clara. When I very first had my appointment I left feeling like I would never get a heart.

My weight was to high and the neuro disease. Well I was not happy and was not gonna go down w/o a fight. I lost 57 lbs and started emailing FA Dr. around the globe!!! I got letters from DR's, literature whatever I could get to educate kaiser and Stanford to even approve me for the list.

I got approved!!!!!!!!!!!! and waited 5 longggggggggggggg months at home. Never got the call. Finally Aug last year I got admitted to kaiser santa Clara to live and wait for a heart.

That was very very hard my son was going to be a senior and my baby girl was starting middle school. I was not home for any of that my husband Scott had to do it all.

I am very blessed to have such a good man in my life he takes the best care of me along with our two children.

I did not know if it was gonna be weeks or months waiting!! one man waited 12 hours another 1 year!

The Dr. came in 15 days later while I was on the phone with my daughter and asked me if I wanted to take a ride? I said ok where? she said Stanford!!!!!!!!!!!!!!!!!!

!! Brianna heard everything and started yelling saying dad,dad mom is going to Stanford, they got a heart!!!!!!

To make it short I got the heart and then had to live in santa Clara for a month before I could come home.
Finally October 9th Scott came and took me home!!!!!!!!!!!!!!! wow it had been 2 months I was gone..

its gonna be a year in 6 days since my surgery. Also just to inform you. I am the very first FA patient in the united states to get a heart transplant.

my main message to you thru all of this is please, please donate your organs or families if ever put in the spot to make that decision. God has a
plan for the 1 dying and they could save someone else. 1 person can save up to 50 people!

BTW I have met my donor mom and we keep in touch and its been good healing 4 her.

I have a 28 yr old heart and not a day goes by I don’t think of Angelina or her mother for making decision to donate her organs.

also go out there and make those special memories and like my heart transplant friend deb says make moments that take your breath away. Don’t put anything off until tomorrow, a walk on beach or a visit to friends or family. We don’t know if there will be a tomorrow!!
As my husband always tells me live for today tomorrow is another day. I know easier said than done trust me I know but its still encouraging words to live by.

Thank you
for listening and being patient with me.



class of 89 rocks!!!!!

Where to begin?

I am a horrible blogger!!!!!!!!!!!
I dont even know where to start! hehehe


Busy with softball softball and more softball. Now its over and we won 1st place two weekends in a row! Now its soccer time and she is trying out for a new fall ball softball team!


School starts tomorrow and my baby is going in 7th grade! wow wee how did that happen?


Rob passed his test, signed and is officially enlisted in the United States Airforce! He leaves in January.

I go to my first annual heart check up on Sept 1 and 2. Hope it all is good. Will keep ya posted on that.


I am going to my 20yr class reunion on Saturday and I was asked to share!! I am not a public speaker and do not do well but I am going to try so i can promote organ donation!!
Pray 4 me that I can do it with out freezing or crying like a baby!


umm I am sad summer is coming to a end. It is my favorite time of the year. Plus my body does better in the heat. Winter cold makes my body ache!! grrr


I have a little more I can share but I will save it for next time hehe



Until then God bless

Happy 4th

Wow its been a long time!!


We are going to Hidden Valley lake for the 4th. We are going to my aunt Sharons best friend house. We have been doing that the last 4 years or so. I love the Lake and Bri loves to go there also.


If we have time I plan on visiting Deb at her trailor as its not to far!


Bri softball team won 2nd last weekend. Wooooooooooo the weekend before that was horrible!!


I have been feeling good and no complaints, other than my walking stinks! I guess I just gotta deal with that.



Scott finally home getting ready for the weekend so have a happy and safe 4th

Tip

victoria case #4

Here is my 4th challenge its so fun to use the images I keep coloring hehe
Click here to find the sketch and details!

victoria challenge #3

This is my challenge this week you can go to the website here for the sketch and info!

grad

Wow im happy and sad that my baby boy graduated h/s!!!!!!!!!!!!!

HE IS GOING TO JOIN THE aIRFORCE IN jANUARY

Here is some pics!

mojo challenge

This is a card i did for Mojo Monday's card challenge.
You can find the sketch here and all the info :)

victoria case challenge

Here is the card I made for the challenge. It had to be white,black and pink. Hope you like it :)

Click here to go to the website

Tuesday

I am happy to say my cold is finally going away!!!!!!!!!!!!!!!!! Just got a lil cough but nose is clear and no more snotty hehehe


Nothing new going on and nothing too really share. Just that i am finally starting to feel better.


Oh im starting a new diet tomorrow!!! Hope it works lol
I need to do something!!!


Have a good evening :)

memorial weekend

Well we came in 1st place again in our division?? Lots of teams so there was division brackets. I decided to come down with a cold last Friday while gone at softball tourney!!
It has now been 9 days and it wont go away!!!!!!!!!!!!!!!!!


Well its a little sad to say but we are leaving the softball team for another one. Right now we are on under12A travel ball team. She can not go to under12B team so we went to a under 14B. They need a pitcher and Bri is a pitcher!! She has not got a chance to pitch on her 12A team because its a better team she is young one and not as big and strong as a couple girls.
She wants to pitch!!! and we want to see her pitch!!!!!!!! This is the main reason.


Well i better go get ready as she has practice in less than 2 hours.
have a good Sunday!

Tip

6x6

1st attemp crayon resist

water bottle holder

post it note pad

Cd/dvd holder



copic 1st attempt

copics 1st attempt

book of me

Book of me

Book of me

Book of me

Book of me

book of me

Book of me
Book of me


Book of me

book of me

A book of me


6x6 book i started of just Bri and I when I was on heart list just in case I did not make it and she had to always remeber us!

6x6

6x6

6x6

Idol

First 1place Go Lady Hawks!


Rob and Janet prom 2009




Kris?? Are you serious!!!!!!!!!!!!!!!!!


Well guess what? Bri's softball team came in 1st Place this past weekend in Fremont!!
Saturday they did so bad and then sunday they kicked butt and won all 4 games to take 1st! Saturdays just place you for sundays then on sundays you play until you lose.


She also had a Soccer practice game and they won 2-1. Bri scored both goals :)
Go my lil sport girl :) The whole team is good but she is a forward and gets all the glory, however we know soccer is def. not a 1 man sport!! She is not the fastest but has a good kick and great ball control!


I really need to take some pictures of stuff I made. Maybe tomorrow!


That shot I got last wed. ohhhhhhhhhhhh man has helped soooo much!! I have no knee pain right now. I hope it last a while!!


Let me see if i CAN FIND A PIC OF rOB AT PROM. iT WILL PROBABLY POST THE PICTURE first again. (opps caps) hehehe


If no pic I will do it!!!


Tip

What's new?

Well lets see what is new? lol


Bri just won 1st place at her very last city wrestle tourney at school!!! Go Bri hehe


Scott has been sick off/on for two weeks now and it does not make any since. I just know I am gonna get sick!!!!!!!!! I dont need anymore issues..lol


I just went to dr today to see why this joint/knee pain. The plan for now is she gave me a shot in knee, x-rays of knee and finger, referral to pt for knee!! Go back in 3 weeks to see if shot or pt helped, oh and lots labs. No prednisone yet (last resort)


Rob grads in less than a month!!! Wow wee where did the time go?


My heart has been ok and I dont go back until June 9th for a appt. Hope that continues to go well.


I think we go to Fremont this weekend for softball, not totally sure. I am ready as we had the last two weeks off and I want out of house and in sun!


I really need to post some pics!! Got Rob at his prom too!! I am such a procrasinator and have no excuse hehehe not like im not on pc all day LOL


Getting ready 4 idol. Go Adam!!!!!!!!!!!!!!! I like Danny too but Adam is amazing!!


Until next time :)
Tip

lagger

oh man I am a lagger!! I still peck on this stupid keyboard that is why!


So Brianna's team came in 2nd place in Sac!! Then we went to Fresno this passed weekend and they did not do so hot!


She now started Soccer as well as Softball!!!!!!!! Oh man its busy around here with the sports!! however I love watching her :)


She likes both sports and does well at both so its hard for her to pick a favorite.


I am still aching really bad and trying to adjust med's to find the perfect mix. Other than that I feel pretty good. I fell on my butt on the cement, ouch!!!!!!!!!!!!! It still hurts and its been 5 days.


Got to run, chiro appt time!! I told ya the evenings are crazy busy!

the weekend

Finally the weekend has arrived and its gonna be a nice (weather) one.


My last check up was Tuesday and I had no biopsy, just blood work (allomap). It checks for rejection as well. My allomap came back like it always is. That means I just go for another checkup in June and do a dsa blood test. If all well then no more biopsy for a year!! (my neck can use the break).


Bri has a softball torney in Sacramento but the first game is at 2:30. Wow late, never had this late of a bracket. Last game starts at 7:30! So we will get home late and have to be back at 7 a.m. lolol



Scott just went to kaiser! He got bit by something in his sleep Thursday night and now this morning hurts really bad and a red line going up arm!! Sign of infection!! Good thing we have a late start with ball. Only 9 girls gonna be there, no subs! Which is fine with me as my daughter is one of the subs!! lol


I have been scrapping my butt off hehe I know I need to take pics. Some really cute layouts to :)


Let ya know how the girls do


Have a good weekend
Tip

Easter

Jesus is the reason!!!!!!!!!!!!!
Happy Easter

Tip

Donor's mother

Well Saturday my mom and dad took me to Hayward to the Ca donor network function and I got to attend that and meet my donors mother and her grandmother. She brought all kinds of pictures for me to look at, then we sat together for the function and then Juanita and Esther joined us for lunch at the Olive Garden.


My mom loved her mom Esther right away. She just liked her personality.


The gathering was to honor everyone who donated organs in 2008. It was a bit sad as most everyone of course who donates is very young :( Some babys too.
I got a nice book with photos etc. of everyone that donated in 2008 to remember them always. It was a special and i am sure emotional day for the families.


Juanita brought a t-shirt for me in rememberance of Angelina and her and my parents thought we sorta looked a like.


After my mom and dad took me to stockton to the hotel Scott and Bri were at for her softball tourney. I got to see them play Sunday and they did very well :)
One game away from the champ. game!

So I had a busy weekend and all went well :)


Until next time

Donor mom

I am going to meet my donor (Angelina's) mother tomorrow! My mom and Dad will take me as Scott will take Bri to a softball tourney.


I will post some pics of us and Angelina later!


Have a great weekend and tell ya about visit later.


Tip

cant sleep

I cant sleep so figured I would update. I had a heart biopsy on Tue 24th and no rejection!! All good


Waiting to hear if DSA came back negative although I am not worrieed about it.


Bri had softball tourney this weekend and hit a triple last night then turn around and did it again today! She has been in a slump and hope her confidence is back.


If my knees and legs were not hurting so bad I would be feeling great!


I have just been crafting as usual and the kids were home last week and again this week. Unlike most parents I like when they are home :) Then I am not as lonely.


I got my hair straightend and I love it, so much easier. I wash it today and still straight. I was scared hehe I like waking up and not having a afro!!


Both kids got a goods report card. Bri was sooo close to straight A's.......Rob is happy with B's. He could do better but dont try. Bri has report and its done week ahead of time, where as Rob is doing the night before!


My Dudley is sooooooooooo happy and loves his papa to death! I am so happy for him and I love not having any dogs. We are to busy to have a dog.


My heart transplant team is referring me to see Dr Perlman (fa) dr in southern ca ucla. I cant wait! She is an ataxia specialist.


I cant think of anything else I need to report so if I remember anything I will share it next time.


Love all
Tppi

Been a while

Easter pull treats

random types of bookmarkers

Bee card

Easter cards

Well its been a week or so since I last posted.


I get off prednisone Saturday woooo

Started a new b/p and I think its helping.

I go in Friday to get a event monitor that I have to wear for a month to make sure heart is ok. I am sure the passing out episode was from the med's.

I have been feeling pretty good the last couple weeks and got some things made. I will post some pictures. That is funny it posted my pictures first and not last hmmmmmmmmmmmmmm oh well :)

Its almost Friday!!!!!!!!!!!!! Have a great weekend

Friedreich"s ataxia

Go watch this video


http://www.montekids.org/kkh/topics/friedreichs-ataxia/

feeling better

Finally feeling better!!!!!!!!!


Just trying to adjust med's to get head back to normal. Started 5 mg prednisone today and stay here until further notice.


Gained a little but not as much as I thought. The prednisone made me retain some fluid and face of course but ankles also puffy.. I been on lasiz for 3 days now and almost gone! Wooooooooooooo


Went to the neurologist yesterday and he said there really has been no change since last visit a year n half ago. ( That is a good thing) SLOW


I am finally cleaning my room today so I can scrap!!! Its been so long since I have felt good to make a HUGE paper mess hehe


Dudley is doing sooooooooooooooooo good with my mom and dad, I am so happy for the little snot!


Bri softball team did really good at there 1st tourney! She is on a pretty good team.


Glad its Friday and maybe I can post a pic of a new something I made hehe

Have a good weekend!

Bored

I have been in my room for days!!!!!!!!!!!!!!!! Iwant out of jail but at the same time this dizzy wont go away.


They are changing my meds today so I hope this helps.


Bri has a softball tourn this weekend in salinas. Hope it dont rain out there, we are leaving early in the morning.


Tonight Scott will drop me off at the Front Room and I will meet all the ladys I used to work with at the college! That will be nice, I have not seen any of them in at least a year!!


That is about all that is new. I have not scrapped as I been laying more than sitting grrrrrrrrrrrrrrr hope to start again!!! I miss my hobby (addiction) hehe


Love all Tip

no more rejection!!

I am back to what I usually am. 1a/1r which is not NER (no evidence of rejection) but they are totally happy with a 1.


Now I just need to get off this high dose prednisone. I passed out yeterday in x-ray (so dizzy) grrrrrrrrrrrrrrr


but I am alive!!!!!!!! wooooooooooooooo hehehe

Food

Omgosh all I want is food!!!!!!!!!!!!!!!!!!!!!! I am already up 18lbs and now this high prednisone I want more food.


I started oral prednisone yesterday. I have been up since 5:30 but I did not want to take ambein to see if for one that is causing dizzy and for two Bri was supposed to have a friendly softball tourn.today but it got rained out.


I dont feel bad except for the high dose med's. They are icky!!


Go tue for another heart biopsy and will know wed if all the massive drugs knocked out rejection! I am not gonna stress unless it dont.


Ok I need to find food grrrrrrrrrrrrrrrrrrrrr this is worse than in the begining!!!!!!

This is how her hair looks most days because she is lazy!!!!!!!!!!!!!!

Will update on me later!

Snuck one of Rob!